Share your story of how hospice palliative care impacts your family.
When my husband was dying of cancer 18 years ago, sometimes he had to be hospitalized, but as much as possible we cared for him at home. At that time, we were very blessed to have Hospice nurses come to our home every day. They were never rushed, and lovingly cared about each member of our family. If it was difficult to manage his pain level, sometimes I would even have to call them in the middle of the night, and it was such a comfort to have the nurse give me more suggestions as to what to do to make him feel more comfortable, and when to take him to the hospital.
I am sure that hospice palliative care would benefit other families in trying times today. I thank God for Hospice nurses. We do not believe in euthanasia or assisted suicide. But we do believe in loving care and asking for the mercy of God and for His will to be done, either to heal our loved one, or to let him naturally die in peace as my husband did. “To live is Christ, to die is gain” when you have faith in the Lord.
A year ago, my mother died in a “nursing home” where she was not known and, therefore, not cared for as sensitively as she might have been had she been allowed to return to the retirement home she had been living in for the past 15 years of her life, (after being sent to the hospital with complications from a breast cancer diagnosis). It was her right to be amongst those who were familiar to her and, therefore, loved her like family. It was very painful to watch her have minimum care and, on some occasions, rough handling, where she ended up due to our government’s choice of an available bed.
The nursing home did it’s best but, unfortunately, fell short of allowing my mother’s palliative care to be the best it could be. It is unconscionable to have to endure this kind of end-of-life treatment for someone who contributed to society as a veteran and as a generally dignified human being! I still cannot accept this forced circumstance and, as a former P.S.W., I know from whence I speak. Unless you are willing to pay 24-hour nurses, who are rarely available anyway, there is no recourse to today’s system of the last, what should be, precious moments of a dear one’s life. Just SAD and very frustrating.Anonymous
My Mom really tried to keep my Dad at home until the very end of his battle with cancer, as this had been his wish. However, after what we thought was a stroke, he was forced to go to the hospital because he needed more treatment than we could provide at home. We were very thankful that Brockville and District Hospice Palliative Care was able to take care of him for his last few days. It meant a lot that he was being cared for in a warm and calm environment where he could receive medical attention when he needed it. My brother and I were also glad that they continued to reach out to my Mom after my dad had left us, as the grieving period was also very difficult to deal with.Anonymous